Saturday, October 18, 2014

Previvor, BRCA and Breast Cancer

It's been a crazy few months. In Jan my sister was diagnosed  with breast cancer. She got tested for the BRCA gene mutation, and it turned out to be positive. I got tested and I am positive also. We inherited it from my Dad. This means that we have a link in the tumor suppressing BRCA gene that is broken or mutated. According to BeBrightPink.org my risk of breast cancer is as high as 87% and ovarian cancer 54%. My genetic counselor said I am a "previvor", a survivor of a predisposition for a disease such as cancer. I found a couple FB groups that have been so informative and helpful. There are so many women going through the same thing I am. After meeting with oncologist breast  surgeons, plastic surgeon and oncologist gyn, and much research.. I made the decision to have a hysterectomy and preventative bilateral mastectomy (PBM).  I want the best odds of not getting cancer. I had other problems  related to gyn, so I am relieved to have had a my hyst a few weeks ago. Menopause hasn't hit me yet, but I'm sure it's on it's way! I am going to have my PBM in Jan/Feb time frame. One gal said on the FB BRCA Sisterhood group..you wouldn't get on a plane that had a 54% or 87% chance of crashing would you?  or It's not elective when the alternative is cancer.  I am a part of a FB group The Documented Life and did this page in my journal back in Jan. This journey has really changed me..and how I see the color pink!


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